It was only a handful of little baby steps, but holy shit, are they a big deal! No, I can't get out of my chair on my own to walk, and I'm nowhere near being able to do it safely away from the safety equipment in the hospital, but I walked!
Now that I've gotten that major announcement out there, it's time for some less exciting news. First, the bad news: my estimated discharge date has been delayed again. This time it's because we're waiting to see if AISH is going to help us out financially or not. I'm also apparently progressing too much, because we've been told that AADL is probably going to refuse to help us out with a power chair because I can get around in my chair using my feet. Yes, that will probably be their reason. No, they probably don't care in the least that my disease makes it so that I tire out really quickly from doing anything physical, which thus makes going long distances in a manual chair impossible for me.
But there's more good news! We should be able to apply for a lighter manual chair from AADL, which will make getting around without power much easier. We're also going to be getting a loaner power chair for about 3 months, which could very well be all I need a power chair for. We've also begun to look at apartments for me, and the one we saw today is a solid candidate. AISH may be willing to cover the rent once we do get an apartment, too, so that will take quite a lot of stress off our shoulders.
Finally, my CK level this week was 981. Not great, but at least it hasn't jumped up.
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